Tom and I were college room mates but I had lost touch with him over the years. B
 reconnected with him like so many others on Facebook. I traded posts and "likes" with him and was shocked to hear that he had been living with Amyotrophic lateral sclerosis (Lou Gehrig's disease) since 2005. 
Last week, on the  4th of July, scientists announced they may have discovered the Higgs  boson. Frankly, I think if it were not a holiday and if there was  nothing else newsworthy taking place, this announcement would have still  have received little notice despite the significance of this discovery.  This is unfortunate for a myriad of reasons, not the least of which is  how American scientific curiosity has been replaced by a need for  superficial sensationalism. Don’t take my word for it--just look at the  amount of major network news airtime devoted to the Higgs boson  announcement vs. the Tom Cruise/Katie Holmes divorce announcement.  Still, the discovery of the Higgs boson sounded a clarion call across  the planet--great discoveries are still out there to be made and with  them, comes great hope. 
As we celebrated the birthday of  the United States that day, it was evident just how shallow our country  had become. In a nation founded by citizen scientists and deep thinkers  such as Franklin and Jefferson, we now look at science like Dorothy and  her companions viewed the Wizard of Oz--a mysterious force that  sometimes grants wishes. Instead of wanting to know how our world works,  we only want to know that it works. Instead of learning the issues  ourselves, we allow the media, politicians, and PR types to influence  our decisions. We have neither the time, nor inclination to learn even  the simplest science--unless we learned in school, let others figure it  out and we‘ll just go along with what they say. To tell the truth, I was  just like most Americans until recently. If not for my diagnosis of  ALS, I probably would have remained a Monday morning scientist… “Hey  Bob, did you see the eclipse last night?” “Solar, lunar, what’s the  difference?” “Did you hear about Tom Cruise and Katie Holmes?“ If it’s  not worth watching on the Discovery Channel, it’s not worth knowing. Sad  to say, our interest in science has been reduced to how entertaining  Hollywood can make it.
Maybe, that’s not a total loss. As a  grad student, I once taught a college course in American Government.  The course professor insisted each student have a daily subscription to  the New York Times. Granted, many in academia would argue that the Times  is the gold standard for daily news. However, these were 18- and 19-yr.  old undergrads, more interested in the next keg party than the minutia  of daily politics. Knowing this, I argued that the students would be  much more likely to read the paper if it had simple articles like those  found in USA Today--simple was better than nothing. Nevertheless, my  argument fell on deaf ears and I can only imagine all those New York  Times subscriptions that found the recycling bin before a single article  was read. That said, I suppose a glossy, but hollow science segment on  TV is better than nothing.
In 2005, I was told I had a  terminal illness for which there was no known cause, no viable  treatment, and no cure. That was it. I was only in my early 40’s, but I  was a dead man walking. Most Americans believe the mantra that if we eat  right, exercise, and live within moderation, we will live to a ripe old  age. Despite following this instruction manual, I was broken and nobody  had replacement parts. I stopped seeing my neurologist, because all he  would do is shake his head and mutter how devastating ALS was, and I  buried my head in the sand hoping it would all just go away. Didn’t  work. As my body slowly rotted away, I desperately looked for answers.  Unfortunately, what I discovered was disheartening. No diseases were  being cured. Big Pharma had everything geared toward “marketing” medical  conditions. There were billions to be made in drugs and treatments to  manage disease. Curing them would eliminate all that profit. ALS only  effects 30,000 Americans, so developing drugs to treat it offered little  financial incentive. I was screwed. So, I started to look outside the  pharmaceutical industry for answers. In order to understand what I was  looking for, I had to rewire my heretofore keg-seeking brain for  science. Not an easy task, but these days I am devoid of a job and a  life in general, so I have had the opportunity to do something I never  actively did before--study.
The good news--I have found  scientific disciplines of which I excel at studying. The bad news--none  of them relate to ALS. However, (and this is really the point of this  writing) like those undergrads I wanted to have read USA Today, I am now  at least able to discern trends and discoveries of significance and I  will say this--we are on the verge of a medical revolution, the likes of  which have never been witnessed by the human race. That said, we are  only at the beginning of this revolution and many of us may never live  to reap its benefits. Nevertheless, I have no doubt that a child born  today will never have to fear ALS, MS, Alzheimer’s, and most other  diseases. Thankfully, Big Pharma has met its match in an even more  powerful industry--insurance. The insurance industry has been getting  killed by Big Pharma’s “string ‘em along” policy. The insurance industry  needs us to either die quickly, or live healthy. Since western society  won’t tolerate early death, healthy lifestyles are the only option. So,  we see the sudden advent of regenerative medicine, stem cells, gene  therapy, etc.
Stem cell therapy alone, is developing at a  phenomenal pace. Seven years ago, the best one could hope for was an  offshore procedure, which simply transferred cells from one body part to  another. Huge controversy surrounded the use of embryos, which were  considered the most viable source of stem cells. Today, a patient can  use their own cells, which can then be manipulated into the needed cell  type, thus avoiding any ethical or rejection issues. Countries free from  regulatory and Big Pharma constraints such as Israel and China, are  developing stem cell technologies to rival our own. Entire organs are  now being created in the lab, paralyzed mice are walking again, and some  patients are seeing complete reversals of their medical conditions--all  from stem cells. One can only imagine what we will see from stem cells  seven years from now!
Seven years ago, there was only one  drug available for ALS patients; a drug which prolonged life expectancy a  whopping 2-3 months! These days, there are a number of promising drugs  currently in clinical trials, with dozens more being looked at.  Diaphragm pacers are now prolonging the need for invasive breathing  procedures. Reports of ALS patients improving after receiving stem cell  treatments both here and in Israel are generating a buzz in the ALS  community. Did I contribute to any of these breakthroughs? Of course  not. Did my newfound interest in science make a difference? Yes, it  saved my life. I cannot overstate that enough. By understanding on at  least a very basic level where the science was taking us, I found  hope…and hope is what sustains me.
So, what does the Higgs  boson have to do with all of this and what’s its significance? Stephen  Hawking’s bestseller, “A Brief History of Time” was supposed to be a  layman’s guide to understanding these types of theories, but every  attempt of mine to read his book resulted in me giving up after two  chapters. I am obviously the last person who should attempt to explain  the Higgs boson to anyone. In any event, here’s my attempt…. The Higgs  boson, also known as the God particle, was first predicted almost 50  years ago. The boson and its corresponding field are the final pieces of  one of the most successful physical theories in history--the Standard  Model, which encompasses all of nature's fundamental particles, and  every fundamental force apart from gravity. The Higgs boson is believed  to be a catalyst for the Big Bang and the creation of the universe. That  said, the real significance for us mortals who can’t fully grasp all of  this is that science persevered. Despite all the crap we now occupy our  lives with, despite the dwindling interest in science, despite monetary  disincentives, scientific curiosity still exists. Those noble souls who  toil away far from the spotlight, let us know that the secrets of the  universe are still attainable and through their deeds, hope springs  eternal.